Category Archives: Social Exclusion

The control of social goods so as to marginalise.

The “underserved” are “undeserved”

I hate the phrase, “the underserved”. I would love to remove it from the lexicon of public health. But it appears to be here to stay, particularly in North America where there is even a journal devoted to them.

A girl with kwashiorkor during the Nigerian-Biafran War (Public Domain; Wikipedia).

On a number of occasions in public lectures I have played with the phrase using a comparison of the “undeserved” and the “underserved”. It usually takes listeners a few minutes to work out that I am not repeating myself over and over again. And if you thought I had typed the same thing twice, look again. “underserved”≠”undeserved”.

My spell-checker knows the difference. It tells me that “underserved” is a spelling error and I almost certainly mean “undeserved”, and herein lies the problem. It is not simply that these two words look and sound similar, it is that there is an unpleasant semantic connection between them. It seems to depend where you lie on the political spectrum which term you use to refer to the same group of people.

On the left, the powerless and the left-behind, those with poor access to services and care would be characterised as the underserved. On the right of politics (or a nationalist left where refugees and migrants are vilified) anyone in need, the powerless and the left-behind, those with poor access to services and care are more typically characterised as the undeserved. The same people, the same need, and the same suffering, but a more or less generous view of our social obligations.

 

Would you give knee surgery to the FAT MAN?

I do understand your plight, Mr Smith.  An arthritic knee can be extremely painful.  And you say it’s so bad you can’t even walk from the living room to the kitchen.  That’s actually very good news!  Yes, yes … awful … but terribly good news. If you can’t walk to the kitchen, you can’t eat. If you can’t eat you’ll lose weight.  And the faster you lose weight, the sooner we’ll schedule your knee surgery.

On 15 March 2017, Dr David Black, NHS England’s medical director for Yorkshire and the Humber, sent a letter of praise to the Rotherham Clinical Commissioning Group (RCCG).  The RCCG had decided to restrict the access to smokers and “dangerously overweight patients” of hip and knee surgery.  The letter was leaked, and it has triggered, according to the Guardian, “a storm of protest.”

The title of this blog is a play on David Edmond’s book, Would you kill the fat man, an exploration of moral philosophy and difficult choices about the valuation of human life. The RCCG’s decision intrigued me. It was essentially a decision about rationing a finite commodity — healthcare. In a world of plenty, rationing healthcare is a non-question.  In the real world, however, in a world of shrinking healthcare budgets and a squeezed NHS, resources must be allocated in a way that means some people will receive less healthcare or no healthcare.  Fairness requires that the rules of allocation are transparent and reasonable.

While you ponder, whether you would give knee surgery to the FAT MAN, I have a follow-up question.  Would you want to see a doctor who would deny you knee surgery because of some characteristic of yours unrelated to whether you would benefit from knee surgery?

I am sorry Mrs Smith, today we decided not to offer clinical services to women, people under 5’7″, or carpenters. We need to cut the costs of our clinical services, and by excluding those groups, we can save an absolute bundle.

I have heard it said of the doctor, academic and human rights advocate, Paul Farmer, that he would regularly re-allocate hospital resources from Boston to his very needy patients in Haiti.  He used to raid the drug stocks of a Boston hospital, stuff them in his suitcase and fly them back to his patients in Haiti.  I have no idea if the story is true or not. It does mark, however, one of the great traditions of medicine.  The role of a doctor is to advocate vigorously for the health (and often social) needs of the patient.  The patient actually in front of them.  The one in need.  Because, if your doctor will not advocate for your health needs, who will?  This is why all the great TV hospital dramas show a clash between the doctor and the hospital administrator.  Administrators ration.  Doctors treat.  The doctor goes all out to save little Jenny, against all odds.  The surly hospital administrator stands in front of the operating room, hand outstretched and declares (Pythonesque): “None shall pass.”

Under the current NHS system of clinical commissioning groups, there are family doctors who are simultaneously trying to make rational decisions about the allocation of limited resources to a population, and trying to be the best health advocates for the patient in front of them.  That screams conflict of interest. If you live in the catchment area of the RCCG and want my advice, check out which doctors are part of the RCCG.  If your doctor is one of them, change doctor immediately. Treating you, advocating for your health interests is what you need and should want.  Unfortunately, if she is part of the RCCG when she is treating you, you are not her principal concern.  Run(!) assuming of course that you don’t need knee surgery.

Should smokers and overweight people receive knee surgery?  Let’s start with smokers.  Why would you not want to treat a smoker?  It is difficult to come up with arguments that are not so outrageous that they are embarrassing to make. But I won’t let personal embarrassment get in the way of stating the top two silly arguments that came to mind:

  1. Smoking is a disgusting habit and anyone who smokes deserves all the pain they get?
  2. Smokers won’t live as long as non-smokers, so the investment in surgery to reduce pain and improve mobility in smokers will not have the net benefits to society as the same investment in non-smokers.

The arguments for restricting the surgery to people who are not overweight are similarly cringe-worthy.  There are also clinical reasons for prioritising the overweight.  The load on joints resulting from increased weight creates greater wear-and-tear and, the broader inflammatory processes that obesity triggers also seem to increase the risks of osteoarthritis — affecting hands as well as knees.  [See for example, here and here].

I can’t find the RCCG’s arguments for restricting access to knee surgery for smokers and people who are overweight, but prima facie it looks a lot like a variant of victim blaming.

Full disclosure.  I am all for the rational allocation of resources.  I think smoking is a disgusting habit. I am overweight and trying to do something about it.  I also think that the arguments for resource allocation need to be more explicit about the social values upon which they are often implicitly based.